The United Nations Office of the High Commissioner for Human Rights (OHCHR) has made reference to persons living with a […]
Read MoreEuropean Joint Programme on Rare Diseases serves as official partners for the 10th European Conference on Rare Diseases & Orphan […]
Read MoreAs part of the European Biotech Week, EuropaBio will host a panel discussion on the 23rd of September in Brussels. […]
Read MoreOn September 18th and 19th in Brussels, PARADIGM, PFMD and EUPATI will organise the Patient Engagement Open Forum. The Forum aims to provide […]
Read More“European Initiative Targets Diagnosis, Treatment of Rare Diseases” article has just been released on ALS NEWS Today! Check it out! […]
Read MoreRepresentatives from paediatric networks, research infrastructures (RIs), European Reference Networks (ERNs), charities, patients’ associations, Young Persons Advisory Groups (YPAGs), companies’ […]
Read MoreThe European Union has invested heavily in health research. Since the early 2000’s it supported the creation of European Research […]
Read MoreThe rare disease international film festival is the first and only film festival on rare diseases in Europe. It collects […]
Read MoreOn September 16th 2019, a workshop “Rare disease perspectives in Central – Eastern Europe”, twinned to the General Assembly of […]
Read MoreEMA’s human medicines committee (CHMP) has recommended the authorisation of Palynziq (pegvaliase), a new medicine for patients aged 16 and […]
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