MARRVEL (Model organism Aggregated Resources for Rare Variant ExpLoration), a new IRDiRC recognized resource, is available online! It is a […]
Read MorePlease join for the next ENDO-ERN webinar on “New therapeutic targets for the treatment of pancreatic neuroendocrine tumours” on Thursday […]
Read MoreThe global guidance for the conduct of clinical trials is currently undergoing a major revision. As part of the worldwide consultation process, […]
Read MoreELIXIR team has recently published in Nature Reviews Genetics. The article explores how European research infrastructures can be leveraged to […]
Read MoreEURO-NMD host educational webinars that occur on a monthly basis. The webinars are presented with the aim of increasing each […]
Read MoreThe European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, […]
Read MoreNewly adopted Marketing Authorisation Decisions (last six months) The Union Register lists all medicinal products for human and veterinary use […]
Read MoreThe Economic, social and cultural rights new report of the UN highlights the status quo and future needs of persons […]
Read MoreNitisinone is probably the biggest source of hope for alkaptonuria (AKU) patients right now. Research efforts under the DevelopAKUre project […]
Read MoreSpeaking in Brussels, Yann Le Cam, CEO of Eurordis, the European organisation for rare diseases, said, “We have gone from […]
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