ELIXIR All Hands Online meeting 2020: EJP RD workshop

EJP RD activities that will be introduced during the sixth ELIXIR All Hands Online meeting 2020 that will take place virtually 8 -10 June 2020. The meeting brings together members of the ELIXIR community from across the ELIXIR Nodes, and collaborators from partner organisations, in order to review ELIXIR’s achievements and activities so far and discuss Read more about ELIXIR All Hands Online meeting 2020: EJP RD workshop[…]

COVID-19 Pandemic Readiness: Let’s not reinvent the wheel – European Medical Research Infrastructures are part of the global response

The European Commission led a highly successful round of funding for diagnostics, treatments and vaccines against coronavirus. These resources must be used in the most efficient way possible. The best way is via cross-border, multi-sector and multi-disciplinary research collaboration based on existing networks, to reach a scale of partnerships and coordination that has yet to Read more about COVID-19 Pandemic Readiness: Let’s not reinvent the wheel – European Medical Research Infrastructures are part of the global response[…]

EJP RD at the ECRD Conference

EJP RD is participating at the ECRD online conference that takes place today and tomorrow. In particular, tomorrow our coordinator, Dr. Daria Julkowska, will be one of the speakers presenting during SESSION 0503: “From Research to Access: Is a European Collaborative Approach Possible?” which is part of the” THEME 5 ACHIEVING THE TRIPLE AS BY 2030: Read more about EJP RD at the ECRD Conference[…]

Covid-19 Global Response – Communication Toolkit

On 4 May, the European Union joined forces with global partners to kick-start the Coronavirus Global Response, a worldwide pledging effort to raise €7.5 billion of funding to rapidly develop and deploy universally available and affordable diagnostics, treatments, and vaccines against the Covid-19. The opening event already raised €7.4 billion, including a significant contribution of Read more about Covid-19 Global Response – Communication Toolkit[…]

GA4GH 8th Plenary is going virtual!

GA4GH 8th Plenary will now be completely virtual, save the dates: September 29 – 30 2020.  The 8th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community. Stay tuned for more details, Read more about GA4GH 8th Plenary is going virtual![…]

ERN TRANSPLANT-CHILD PATIENT’S GUIDE

ERN TransplantChild gives some important recommendations for transplanted patients and their families to take care of their health after this complex procedure. The guide is common for all types of transplants and includes different aspects of the post-transplantation process such as medication, rejection, infections, emotions and some frequently asked questions. The Patient’s Guide is in English, Read more about ERN TRANSPLANT-CHILD PATIENT’S GUIDE[…]

GA4GH: Regulatory and Ethics Perspective on COVID-19 Data Sharing

Efficient international collaboration and data sharing, two key components in the advancement of genomic medicine and human health, are proving essential for effectively responding to the global COVID-19 pandemic. The Global Alliance for Genomics and Health is focused on developing standards and guidance for responsibly sharing human genomic and related health data. Because of this, the Read more about GA4GH: Regulatory and Ethics Perspective on COVID-19 Data Sharing[…]

Coronavirus: Commission issues guidance to mitigate clinical trial disruption in the EU

The Commission has published guidance to ensure that clinical trials can continue taking place in the EU during the COVID-19 pandemic. The aim is to mitigate the disruption of clinical research in Europe and therefore the negative effects of the pandemic, without compromising on quality and safety. These recommendations are an important part of the overall Read more about Coronavirus: Commission issues guidance to mitigate clinical trial disruption in the EU[…]

ELIXIR All Hands 2020

The sixth ELIXIR All Hands meeting will take place virtually 8 -10 June 2020. The meeting brings together members of the ELIXIR community from across the ELIXIR Nodes, and collaborators from partner organisations, in order to review ELIXIR’s achievements and activities so far and discuss plans for the future.  Participants from ELIXIR Nodes and invited Read more about ELIXIR All Hands 2020[…]