2024 Research call on “mechanisms and measurement of disease progression in the early phase of neurodegenerative diseases”

On January 4, 2024, the EU Joint Programme – Neurodegenerative Disease Research (JPND) initiative launched a transnational call for mechanisms and measurement of disease progression in the early phase of neurodegenerative diseases with the aim of improving the understanding of disease mechanisms and advancing measurability of disease progression at early and pre-symptomatic stages of neurodegenerative diseases. Proposals…

Announcement of EP PerMed’s Joint Transnational Call (JTC) 2024

Identification or Validation of Targets for Personalised Medicine Approaches (PMTargets) The European Partnership for Personalised Medicine (EP PerMed), supported by the European Union under Horizon Europe (Grant Agreement N° 101137129), launches its first joint transnational call (JTC2024) for proposals on “Identification or Validation of Targets for Personalised Medicine Approaches (PMTargets)”. In total, 39 funding organisations participate…

International Myotonic Dystrophy Consortium Meeting (IDMC-14)

The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen from 9-13 April 2024. Please note: deadline early bird registration is January 1, 2024. Registration is open here.More information on the program here.  Nijmegen  is the oldest city in the Netherlands and one of the places where the disease-causing repeat expansion was identified in the nineties.…

SAVE THE DATE – XVI Foresight Training Course (18 December 2023, Bari and online)

Fondazione Gianni Benzi Onlus, in collaboration with Università degli Studi di Bari Aldo Moro, organises the XVI Foresight Training Course “Repurposing to cover unmet needs: the current scenario in Europe and the proposed changes to the Pharmaceutical Legislation”. It will be focused on drug repurposing, an emerging and dynamic drug development strategy to make new therapies available to…

Multistakeholder workshop on Patient Registries (hybrid)

The European Medicines Agency (EMA) is set to host an event, the « Multistakeholder Workshop on Patient Registries » on February 12-13, 2024. This two-day hybrid workshop promises to delve into the intricacies of patient registries, offering a unique platform for regulators, registry holders, industry professionals, and a broad spectrum of stakeholders to engage in meaningful discussions.…

5th International Conference on Rare Diseases (RARE2023)

The 5th International Conference on Rare Diseases (RARE2023) will be held in Budapest, Hungary on 30 November – 1 December 2023. RARE2023 is honored to welcome world-renowned speakers from 15 different countries, all of whom are experts in the field of Rare Diseases, who will present ground-breaking and cutting-edge news on diagnosis, treatments and networking…

EURORDIS Open Academy Schools 2024

The 2024 edition of the Open Academy Schools will take place in-person on 3-7 June in Barcelona. The face-to-face intensive week of the Open Academy School on Medicines Research & Development (formerly EURORDIS Summer School) and the Open Academy School on Scientific Innovation & Translational Research (formerly EURORDIS Winter School) take place during the same week, incorporating parallel sessions, focusing on School-specific topics, and joint…