The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which […]
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A new, free-of-charge webinar in collaboration with the AAAS/Science magazine is available on demand since July 9th. This webinar broadcasted […]
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The European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB) and BBMRI-ERIC are organising the Europe Biobank Week […]
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EJP RD’s innovative Rare Diseases Research (RDR) Challenges call in partnership with Fondation Maladies Rares was aimed at facilitating and funding collaboration between industry, academia, SMEs, […]
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As part of the training activities proposed by the EJP RD, a 3-day training course titled “Quality assurance, variant interpretation […]
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In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Rhabdoid tumors in clinic and research: From basic biology to the patient […]
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The General Assembly of TEDDY Network will be held online, within a hearing at the Council of Europe this July […]
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The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives […]
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The recording of Science’s webinar on innovation hubs as a viable option to address rare diseases, that took place on […]
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The World Duchenne Awareness Day, taking place each year on September 7th, is the official campaign to raise awareness for […]
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