The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, […]
Read MoreEURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards 2022 are now open. The Awards are presented to patient advocates and organisations, […]
Read MoreThe European Federation of Pharmaceutical Industries and Associations (EFPIA) is hosting a multi-stakeholder virtual workshop titled “Accelerating Adoption of Complex Clinical Trials in […]
Read MoreBased on evidence from a single-arm clinical trial, the European Medicines Agency (EMA) has recommended granting a marketing authorisation in the European […]
Read MoreFindacure, a UK-based nonprofit that works in the rare disease sector, is organising its annual Drug Repurposing for Rare Diseases […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop on clinical epidemiological research for ERNs titled “Clinical Research: […]
Read MoreThe World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) has three Scientific Committees, one each for Diagnostics, Therapies and Interdisciplinary aspects of […]
Read MoreNCATS along with NICHD and NINDS of the National Institutes of Health (NIH) are co-hosting a virtual NIH roundtable meeting […]
Read MoreAs part of its review of the Orphan and Paediatric Regulations announced in 2020, the European Commission (EC) has launched […]
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