VASCERN, The European Reference Network for Rare Multisystemic Vascular Diseases, has partnered with the Marfan Foundation to co-lead the first E3 International Summit: […]
Read MoreUpdate to rare disease database allows researchers and clinicians to input, interpret and share all types of genomic variants in […]
Read MoreThe European Paediatric Formulation Initiative (EuPFI) works to improve the preparation of better and safer medicines for children. One area they are […]
Read MoreECSEL JU, the joint undertaking for electronic components and systems, has launched a Call for proposals on decentralised clinical trials […]
Read MoreERA-LEARN Report on Inclusiveness in European R&I Partnership Programmes has been released. This report presents the results of an ERA-LEARN […]
Read MoreThe European Commission has initiated a study that aims to examine in which manners the processing of personal health data […]
Read MoreThe EMA has decided to waive all fees for scientific advice for academic researchers developing orphan medicines, to further encourage […]
Read MoreThe Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for […]
Read MoreWorld Duchenne Organization is involved in Share4Rare, a platform to boost rare disease research and recently, a new and improved […]
Read MoreEuropean Biotech Week: Celebrating Innovation The European Biotech Week established itself as a week of celebrations of science and biotech. […]
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