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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - News
  • 12 Jun
  • 2019

European Research and Innovation Days

  • News

European Research and Innovation Days is the first annual policy event of the European Commission, bringing together stakeholders to debate […]

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  • 12 Jun
  • 2019

TO-REACH consortium draft Strategic Research Agenda open for consultation

  • News

The draft Strategic Research Agenda (SRA) developed by the EU funded TO-REACH Consortium is now available for consultation. The SRA […]

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  • 12 Jun
  • 2019

EURORDIS position paper: Achieving Holistic Person-Centred Care to Leave No One Behind

  • News

On 17th May, EURORDIS launched a Position Paper on ‘Achieving Holistic Person-Centred Care to Leave No One Behind’, at the […]

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  • 12 Jun
  • 2019

Horizon Impact Award

  • News

The European Commission has launched the first Horizon Impact Award. This award recognise and celebrate outstanding projects that have used […]

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  • 09 May
  • 2019

“Organizing & maximizing rare disease biological sample data in biobanks” training course

  • News

The training, an acticity of the EJP RD WP14.4, took place on 1-2 April in Milan, Italy. The programme of […]

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Rare Disease Day 2019: today’s the day!

  • Posted on28 February 2019
  • News

The EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized […]

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EJP RD participates in the Rare Diseases 2019 campaign!

  • Posted on28 February 2019
  • News

We recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific […]

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Latest Posts

  • New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
  • Satisfaction Survey for EJP RD services
  • Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
  • AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023
  • EJP RD Joint Transnational Call 2023: Now Open!

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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