Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how […]
Read MoreInternational Rare Diseases Research Consortium (IRDiRC) member Dr. Anneliene Jonker, Vice Chair of the Therapies Scientific Committee (TSC) of IRDiRC, has been interviewed […]
Read MoreEU-STANDS4PM, a European standardization framework for data integration and data-driven in silico models for personalised medicine, has published a review […]
Read MoreThe European Joint Programme on Rare Diseases (EJP RD) is proud to announce that EJP RD member Prof. Franz Schaefer […]
Read MoreAs part of the training activities proposed by EJP RD, an online training course on “Training on strategies to foster […]
Read MorePARIS, France and TUCSON, Ariz., U.S., February 1st, 2022: The European Joint Programme on Rare Diseases (EJP RD) announces a collaboration […]
Read MoreThe European Medicines Agency’s (EMA) Clinical Trials Information System (CTIS) has gone live as of January 31st. CTIS is the […]
Read MoreThe Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force on Drug Repurposing Guidebook to help developers (of […]
Read MoreThe Dravet Syndrome Foundation Spain works to improve the quality of life of people with Dravet syndrome and their families. […]
Read MoreAn EJP RD funded networking event on the rare neurological disease caused by anti-IgLON5 antibodies, discovered in 2014 by researchers […]
Read More