The board game FAIRopoly developed by EJP RD illustrates the FAIRification steps followed by the ERNs registries to make their […]
Read MoreOn February 25th, a new Rare Care Centre was launched in Australia, which will provide a holistic model of care for […]
Read MoreAs part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership […]
Read MoreAs part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of […]
Read MoreOn the occasion of Rare Disease Day 2022 (February 28th), the International Rare Diseases Research Consortium (IRDiRC) has released an […]
Read MoreThe 2nd International Conference on Rare Diseases is being organized by 95, Rare Alliance Greece. With the theme of “The Balancing […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Translational research on bone impairment in rare diseases” aimed at giving an […]
Read MoreTo commemorate Rare Disease Day 2022 (February 28th), EJP RD is proud to announce the launch of our Instagram account […]
Read MoreThe European Commission (EC) has adopted the 2022 work programme of the European Innovation Council (EIC), opening funding opportunities worth […]
Read MoreThe dates for the 2022 edition of the Innovation Bootcamp in Rare Diseases (IBRD2022), sponsored by Congress Care, have been […]
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