Prof. Franz Schaefer conferred EURORDIS Scientific Award 2022

The European Joint Programme on Rare Diseases (EJP RD) is proud to announce that EJP RD member Prof. Franz Schaefer has been conferred the EURORDIS Scientific Award for his work and the positive impact he has made on rare disease research and the patient community.

The EURORDIS Scientific Award, which forms part of the annual Black Pearl Awards, recognises Prof. Schaefer’s scientific excellence and comprehensive reach, the outstanding dedication he has demonstrated in the rare disease community and the positive impact he has made on rare disease research and patient community on an international level.

EJP RD and EURORDIS acknowledge his leadership and outstanding work in the ERN Coordinators Group and in several of the cross-ERNs Working Groups, as well as his prominent role in rare disease Registries, his innovative approach in the use of health outcome measures to drive improvements in care and his work within the EJP RD.

The Award ceremony will be held online on February 8th at 18.00 CET. Registration is mandatory.

For more information and registration: