The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place on 15-16 May 2024, both online and in Brussels! It will be held as an official event under the auspices of the Belgian EU Council Presidency. ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe, aimed at identifying…
The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC “Diagnosis Rare Diseases: from the clinic to research and back” on October 16th. This update will be available until December 8th, 2023. During this period, expert mentors will be actively present on the platform to answer the…
The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update will be available until December 2nd, 2023.In this course, you’ll get to learn from experts about how medicines are developed, tested in clinical trials, approved by regulators, and the…
The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update will be available until December 2nd 2023. With expert guidance, explore drug discovery, clinical trials, regulatory approval, and challenges in this unique field. Gain insights from patients and…
Join us for a groundbreaking 2-day face-to-face event that promises to revolutionize the world of rare disease research! The European Joint Programme on Rare Diseases proudly presents the culminating training workshop in its series of capacity-building programs on biobanking. The free event will be held on December 13-14, 2023. 📝 Registration Deadline Register here by…
The 2024 edition of the Open Academy Schools will take place in-person on 3-7 June in Barcelona. The face-to-face intensive week of the Open Academy School on Medicines Research & Development (formerly EURORDIS Summer School) and the Open Academy School on Scientific Innovation & Translational Research (formerly EURORDIS Winter School) take place during the same week, incorporating parallel sessions, focusing on School-specific topics, and joint…
Join our advanced online training « Item response models for analysing assessments in rare diseases » Mark your calendar for a remarkable online training experience on 29 September 2023! This FREE advanced-level training is your gateway to exploring the intricate world of statistical modelling and inference. Registration Deadline: Register here by 28 September 2023 at 23:45 p.m.…
The deadline for nominations for the #EURORDISAwards2024 has been extended to September 10th! The awards recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community. Do you know someone who goes above and beyond for your community? Don’t miss this chance, nominate now: https://blackpearl.eurordis.org/nominate/
Are you intrigued by the world of genetics and its role in uncovering mysteries behind rare diseases? If so, mark your calendars for the upcoming Variant Prioritization and Enrichment for Rare Diseases Workshop, a three-day immersive event that will equip participants with the knowledge and skills needed to navigate the intricate landscape of rare disease…
The ERICA & EJP RD Joint Conference is scheduled for November 21st, 2023, in Amsterdam. This event aims to unite stakeholders in European Reference Networks (ERNs) and Rare Disease (RD) Research. It will bring together medical professionals, researchers, patient advocates, policymakers, and industry representatives interested in improving care and advancing research for rare diseases. A…