Today we release our latest online course on « Interim Analysis, Adaptations, and Master Protocols »!In this lecture, we will focus on the role of interim analysis to react to new data emerging from inside and outside the trial. More information on intermediate courses
You can now watch the insightful video featuring Johan De Graaf, a Patient Expert. In his video, Johan emphasizes the vital role of patient involvement in research, highlighting significant changes observed in the past five years. Watch the full video here.
The registration deadline for the Final EJP RD Conference has been extended to May 22nd, 2024!Join us online on May 27-28, 2024 for engaging sessions on rare disease research. Check out the agenda here for a sneak peek into the sessions and plan your conference experience!Register here This event is a partner event to the…
The video of Alex Sverdlov’s course on « Early Phase Trial designs in Rare diseases » is now live! Dive into the statistical methods crucial for developing novel therapies amidst challenges like small patient populations and ethical constraints. Watch the course here.
Alessandro Prigione, coordinator of the project CureMILS funded under EJP RD’s Joint Transnational Calls 2020, discusses their work on Leigh syndrome and the importance of international collaboration in a new interview. More information on CureMILSMore interviews on EJP RD funded projectsExplore the EJP RD Funded Projects Dashboard
We’re thrilled to announce the release of our second intermediate course: « Bayesian Thinking and Methods » by Prof. Emmanuel Lesaffre. Dive into the world of Bayesian analysis and enhance your statistical toolkit! Check it out now and take your learning journey to the next level! Watch the video here: https://www.youtube.com/watch?v=6TtZPdW2fVM
Today marks the launch of the EJP RD intermediate courses series on statistical methods for rare diseases clinical trials. The first intriguing topic « Statistical Methodology for Very Small (and Very Large) Studies » by Prof. Geert Molenberghs, is now available via the following link: https://www.youtube.com/watch?v=7uLBqaqjGc4 Stay tuned for the release of the next five courses, with…
Watch the insights from the latest EJP RD interview with Sarah Weckhuysen, a researcher funded under EJP RD’s Joint Transnational Call. The collaborative approach of Sarah’s consortium, uniting experts across Europe which involves clinicians, scientists, and patient organizations, exemplifies a successful synergy for impactful research. Kudos to the team’s dedication and promising results! Watch her interviewMore…
To mark Rare Disease Day, we are launching the EJP RD Funded Project Dashboard! Dive into a comprehensive view of all funded projects (Joint Transnational Calls and Networking Support Scheme calls) Explore the Dashboard: https://funded-projects.ejprarediseases.org/ Uncover essential project details, budgets, abstracts, and other fascinating figures.
It’s Rare Disease Day! The European Joint Programme on Rare Diseases (EJP RD) proudly presents its latest video: « The European Joint Programme on Rare Diseases: Transformative Stories. » This production features heartfelt testimonies that illustrate the profound impact of EJP RD. The video is available here Watch the video to witness the transformative journey and the…