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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: EJP RD News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EJP RD News
  • 23 Jan
  • 2023

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]

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  • 16 Jan
  • 2023

Satisfaction Survey for EJP RD services

  • EJP RD News

The European Joint Programme on Rare Diseases (EJP RD) - Work Package 19 (WP19: “Facilitating partnerships and accelerating translation for higher […]

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  • 16 Jan
  • 2023

Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open

  • EJP RD News

As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed […]

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  • 12 Dec
  • 2022

EJP RD Joint Transnational Call 2023: Now Open!

  • EJP RD News

The  European Joint Programme on Rare Diseases launches today the Joint Transnational Call 2023, a funding opportunity for research projects on the development of new […]

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  • 08 Dec
  • 2022

European Union (EU) Health Summit – Rare Diseases Moonshot launch

  • EJP RD News

Join us on 8th December for the European Health Summit that will take place in Brussels (Belgium) and online to find out more about our journey […]

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  • 06 Dec
  • 2022

EJP RD – ERN Workshop: RARE TOGETHER

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits […]

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  • 23 Nov
  • 2022

EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” […]

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  • 16 Nov
  • 2022

Fostering innovation for rare diseases in Europe: Chiesi supports the RDR Challenges Call

  • EJP RD News

Chiesi has published an article showcasing support towards EJP RD’s RDR Challenges Call. The innovative “Rare Diseases Research (RDR) Challenges” […]

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  • 10 Nov
  • 2022

The “Joint Transnational Call” back on December 12th

  • EJP RD News

The EJP RD Joint Transnational Call, a funding opportunity for research projects, will be launched on December 12th. The aim […]

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  • 28 Oct
  • 2022

EJP RD – ERN Workshop: Epidermolysis bullosa: from genes to translation into therapies

  • EJP RD News

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Epidermolysis bullosa: from genes to translation into therapies” is being organized by […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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