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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: EJP RD News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EJP RD News
  • 21 Aug
  • 2023

ERICA & EJP RD Joint Conference in Amsterdam

  • EJP RD News, ERN-Research (ERICA), News

The ERICA & EJP RD Joint Conference is scheduled for November 21st, 2023, in Amsterdam. This event aims to unite […]

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  • 16 Aug
  • 2023

EJPRD ERN Workshop: CDH1 related hereditary diffuse type gastric cancer – Registration date extended!

  • EJP RD News, News

The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is very rare and as such underrecognized. Early […]

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  • 14 Jun
  • 2023

Publication of an EJP RD Abstract in the Orphanet Journal of Rare Diseases

  • EJP RD News, News

The abstract on “The European Joint Programme on Rare Diseases: an integrative approach fostering the RD research ecosystem“ submitted in […]

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  • 14 Jun
  • 2023

Our new interview of Pr. Pierre Emmanuel Gleizes – RIBOEUROPE: The European Ribosomopathy Consortium!

  • EJP RD News, News

Watch the insightful interview with Pr. Pierre-Emmanuel Gleizes, Coordinator of RIBOEUROPE: The European Ribosomopathy Consortium.  Funded by the European Joint […]

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  • 08 Jun
  • 2023

New EJP RD ERN Workshop – Urogenital Tissue Engineering from bedside to bench and back!

  • EJP RD News, News

Regenerative Medicine aims to address unmet medical needs by combining our body’s own repair abilities with innovative engineering.  Our workshop […]

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  • 06 Jun
  • 2023

EJP RD – RD Connect Genome-Phenome Analysis Platform (GPAP) webinar

  • EJP RD News, News

This is an introductory webinar to demonstrate the benefits of using the RD-Connect Genome-Phenome Analysis (GPAP) platform for rare-disease analysis. […]

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  • 05 Jun
  • 2023

Brain Metabolism Workshop: From Rare Diseases to Common Biological Pathways

  • EJP RD News, News

Brain metabolism, which has been largely disregarded in the traditional approach to investigating and treating neurological diseases, is a major clue […]

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  • 26 May
  • 2023

New ERN Workshop: CDH1 related hereditary diffuse type gastric cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance

  • EJP RD News, News

The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is very rare and as such underrecognized. Early […]

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  • 26 May
  • 2023

New ERN Workshop: Advances in regenerative medicine and tissues engineering for rare musculoskeletal diseases

  • EJP RD News, News

This workshop aims to improve the knowledge and competences on up-do-date regenerative medicine and tissue engineering technologies exploited in the […]

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  • 23 May
  • 2023

New EJP RD Training: Replicated N-of-1 Randomized Controlled Trials (RCTs) for Rare Diseases

  • EJP RD News, News

An N-of-1 trial is defined as a prospective, multiple crossover trial in a single patient. If randomization of the treatment sequence […]

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  • Save the date: 12th  European Conference on Rare Diseases and Orphan Products (ECRD)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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