Skip to content
EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
x
  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
    • Privacy policy
  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • FAIRification
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
      • Clinical Trials Methodology
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
  • Helpdesk

Category: EJP RD News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EJP RD News
  • 27 Oct
  • 2022

New EJP RD video

  • EJP RD News

We are thrilled to share with you the new EJP RD video produced for ASHG TV which focuses on the […]

Read More
  • 25 Oct
  • 2022

SAVE THE DATE – XV Foresight Training Course (15-16 December 2022, Bari)

  • EJP RD News, News

Fondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course […]

Read More
  • 21 Oct
  • 2022

EJP RD Training: Biobanking in rare diseases: the Poland experience

  • EJP RD News

The upcoming EJP RD training entitled Biobanking in rare diseases: the Poland experience is now open for registration. The 2-day […]

Read More
  • 17 Oct
  • 2022

EJP RD launches a new free MOOC “Introduction to translational research for Rare Diseases”

  • EJP RD News

We are glad to announce the launch of the new MOOC entitled “Introduction to translational research for Rare Diseases” will […]

Read More
  • 10 Oct
  • 2022

EJP RD will launch a new free MOOC “Introduction to translational research for Rare Diseases”

  • EJP RD News

On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week […]

Read More
  • 05 Oct
  • 2022

New article: Identifying obstacles hindering the conduct of academic-sponsored trials for drug repurposing on rare-diseases: an analysis of six use cases

  • EJP RD News

A new article entitled Identifying obstacles hindering the conduct of academic-sponsored trials for drug repurposing on rare-diseases: an analysis of […]

Read More
  • 05 Oct
  • 2022

Registration open for the Third International Summit on Human Genome Editing

  • EJP RD News

The registration for the Third International Summit on Human Genome Editing is now open. The event will take place on […]

Read More
  • 05 Oct
  • 2022

Rare Conversations – Rare Disease Policies: Pioneering the way towards a resilient ecosystem

  • EJP RD News

EJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a […]

Read More
  • 03 Oct
  • 2022

ERN Research Mobility Fellowship call now open

  • EJP RD News

EJP RD is glad to announce that the last call for Research Mobility Fellowships is now open until November, 13th, 2022. The call […]

Read More
  • 26 Sep
  • 2022

International Conference on Clinical Research Networks for Rare Diseases

  • EJP RD News

The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing […]

Read More
  • 1
  • 2
  • 3
  • 4
  • 5
  • ...
  • 12

Search

Categories

  • EJP RD News
  • ERN-Research (ERICA)
  • Networking events funded by EJP RD
  • News
  • Uncategorized

Popular Tags

biobank clinical research clinical trial conference drug repurposing duchenne ejp rd EJPRD ema ERICA ERN ern research training workshops eurogen european commission EURORDIS event FAIR fda funding funding opportunity gene therapies genomics health data innovation irdirc MOOC networking networking event networking support scheme NSS OMP regulation orphan drugs paediatric patient patients rare disease day rare diseases report survey symposium training virtual event webinar workshop world duchenne organization

Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

Featured Links

  • Helpdesk
  • Sitemap
  • Careers

Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

© Copyright EJP RD.
×
You must be logged in before using WishList. To login click here