RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]
Read MoreThe GA4GH Data Access Committee Review Standards subgroup has put together a brief survey on implementation factors when using software or […]
Read MoreA funded networking event “European Forum on Visceral Myopathy 2022” is being organised in Camogli, Italy. This event has received […]
Read MoreThe third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]
Read MoreAn EJP RD funded networking event on the rare neurological disease caused by anti-IgLON5 antibodies, discovered in 2014 by researchers […]
Read MoreThe EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and […]
Read MoreWe are glad to pre-announce the Joint Transnational Call 2022, a funding opportunity for research projects on the development of […]
Read MoreVASCERN will hold a webinar on Tuesday November 23rd, 2021 from 5pm to 6pm (CET) entitled: Diagnostic and Management Pathway for Severe and/or […]
Read MoreDEADLINE EXTENDED: 23 NOVEMBER 2021 Are you an adolescent aged from 12 to 18 interested in the themes of health, […]
Read MoreOn October 6th, 2021, the European Commission (EC) opened a new funding call titled “Tackling diseases (Two Stage – 2022) […]
Read More