The World Health Organization (WHO) is seeking experts to serve as members of the Strategic Advisory Group of Experts on In Vitro […]
Read MoreThe European Joint Programme on Rare Diseases, alongside TRANSCAN and the Innovative Health Initiative were selected by ERA LEARN to […]
Read MoreThe World Duchenne Organization is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 […]
Read MoreWe empowered a community that deserves to be heard. #RAREvolution Berlin, Germany – 24 March 2023. The seventh edition of […]
Read MoreSolve-RD, a research project funded by the European Commission for five years (2018-2022), having the ambitious goals set out by the International Rare Diseases […]
Read MoreIn the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]
Read MoreAs part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]
Read MoreThe deadline for the “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” […]
Read MoreHappy International Women’s Day ! EJP RD is proud to celebrate the women who represent 56% of the EJP RD […]
Read MoreDeadline to submit applications: May 4, 2023 The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare […]
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