The virtual event Unlocking innovation and access for rare disease patients in Europe was held online on the 22nd of […]
Read MoreHeritable human genome editing has been proposed as a means of helping parents avoid passing genetic diseases to future generations. […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is glad to announce the opening of two new Task Forces: “Shared Molecular […]
Read MoreOn the occasion of Rare Disease Day 2021, Biogen is pleased to invite you to the virtual event: “Unlocking innovation […]
Read MoreRing14 International yearly solicits international research projects focused on the Ring 14 or chromosome 14 related syndromes. The projects can […]
Read MoreThe European Medicines Agency (EMA) has published for public consultation a draft toolbox guidance on scientific elements and regulatory tools […]
Read MoreThe Food and Drug Administration will be holding a virtual public meeting on Friday, March 5, 2021, from 9:00 a.m. […]
Read MoreIf you are interested in participating in an initiative in order to contribute to the implementation of the children rights […]
Read MoreFor the first time, EURORDIS, alongside its Council of National Alliances, Council of European Federations and its members, have set […]
Read MoreThe ERA-NET Neuron Call for proposals for Transnational Research Projects on Neurodevelipmental Disorders was launched January 7 and will close […]
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