New opportunity to follow the MOOC on Rare Diseases Diagnostics! Given the enthusiasm raised by the MOOC “Diagnosing Rare Diseases: from […]
Read MoreWe are happy to invite you to take part in a workshop addressing “Ethics and regulatory considerations for ERN Data Access Committee […]
Read MoreThe ProDGNE consortium is organising the ProDGNE Meeting 2022, a multi-stakeholder opportunity to meet in person, discuss impactful research in GNE Myopathy (GNEM) and […]
Read MoreA funded networking event “Regional Cooperation: Conference on new concepts and approaches in lymphoma” is being organised in Belgrade, Serbia […]
Read MoreFamilial Adult Myoclonic Epilepsy (FAME) is a rare genetic condition, characterized by the occurrence of cortical tremor, myoclonus, and generalized […]
Read MoreA funded networking event “The AKU Scientific Conference” is being organised. This event has received funding support from the EJP […]
Read MoreERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any […]
Read MoreRDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]
Read MoreThe GA4GH Data Access Committee Review Standards subgroup has put together a brief survey on implementation factors when using software or […]
Read MoreA funded networking event “European Forum on Visceral Myopathy 2022” is being organised in Camogli, Italy. This event has received […]
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