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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: webinar

EJP RD - European Joint Programme on Rare Diseases - News and events - News - webinar

Information webinar on Joint Transnational Call 2022

  • Posted on13 December 2021
  • EJP RD News, News

Following the successful implementation of three Joint Transnational Calls since 2019, EJP RD is glad to announce the upcoming launch […]

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  • 03 Dec
  • 2021

EJP RD co-organises meeting on Domain specific Common Data Elements (DCDEs) Curation

  • EJP RD News, News

EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and […]

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  • 10 Nov
  • 2021

VASCERN webinar: Diagnostic and Management Pathway for Severe and/or Rare Infantile Hemangiomas

  • News

VASCERN will hold a webinar on Tuesday November 23rd, 2021 from 5pm to 6pm (CET) entitled: Diagnostic and Management Pathway for Severe and/or […]

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  • 14 Oct
  • 2021

EMA Webinar for SMEs and Academia on the Clinical Trial Regulation and the Clinical Trials Information System

  • News

The European Medicines Agency (EMA) is organising a webinar for small and medium enterprises (SMEs) and academia on the Clinical […]

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  • 27 Sep
  • 2021

IMI impact on patient involvement event

  • News

The Innovative Medicines Initiative (IMI) is organising a series of online live sessions on IMI’s Impact, where key actors will […]

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  • 10 Sep
  • 2021

RWE4Decisions Webinar: Delivering a Health Data Strategy for the European Reference Networks (ERNs)

  • News

RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is organising a webinar entitled “Delivering a Health […]

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  • 03 Sep
  • 2021

Webinar: Leaving the darkness – tackling rare bone diseases

  • News

Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of […]

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  • 03 Sep
  • 2021

EuropaBio Advanced Therapies webinar on EU case for equitable patient access to advanced therapies

  • News, Uncategorized

EuropaBio continues its Advanced Therapies webinar series of events, interviews, and publications with a virtual discussion on avenues for enhancing the access of […]

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  • 03 Sep
  • 2021

CeBIL Annual Symposium 2021 – Orphan Drug Innovation: Needs and Priorities

  • News

The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s […]

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  • 13 Jul
  • 2021

Virtual Round Table: The future of rare diseases in Europe

  • News

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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