RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is organising a webinar entitled “Delivering a Health Data Strategy for the European Reference Networks (ERNs): Developing a Shared Vision with All Stakeholders” to discuss what a co-created Health Data Strategy for the ERNs could look like.
The webinar will take place on September 29, 2021 from 16.00 – 17.30 CET.
During the webinar, experts from ERNs will discuss the need to build a long-term vision and a holistic data strategy for ERNs, which is connected with the wider policy agenda and aligned with the proposed European Health Data Space and the work of the European Joint Programme on Rare Diseases (EJP RD). Dr. Daria Julkowska, the Coordinator of the EJP RD, will be an expert member of the panel discussion along with other EJP RD partners.
More information and registration here: https://rwe4decisions.com/event/delivering-a-health-data-strategy-for-the-european-reference-networks/