webinar

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

NewsPar Ngangta Mbaidoum 20 avril 2021

Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take…

RDCA-DAP Professional Webinar Series: Value of Integrated Data and Analytics in Rare Disease Drug Development

NewsPar Onakoy Tanguy 22 mars 2021

The Rare Disease Cures Accelerator–Data and Analytics Platform is launching a new webinar series with the goal of sharing with the community examples of the use of rare disease person-level data in drug development and regulatory decision making. The series will feature 1-hour webinars highlighting analyses that have been done in individual disease areas, how…

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webinar

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

RDCA-DAP Professional Webinar Series: Value of Integrated Data and Analytics in Rare Disease Drug Development

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