The AKU Society, a UK-based charity, has launched a crowdfunding campaign to raise funds for “Leave No Patient Behind – […]
Read MoreThe 1st International Conference on Rare Diseases and Paediatric Research is being organized by 95, Rare Alliance Greece together with […]
Read MoreEJP RD is co-organising the “Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward” conference in cooperation with Alexion, EURORDIS, EUCOPE, […]
Read MoreThe Professional Society for Health Economics and Outcomes Research (ISPOR) is organising a webinar entitled “Health Preference Research in the […]
Read MoreThe National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events […]
Read MoreThe European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future […]
Read MoreThe United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled “On the road towards […]
Read MoreAs part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and […]
Read MoreEJP RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease […]
Read MoreThe European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. […]
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