International Summer School 2021: Rare Disease Registries and FAIRification of Data

As part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is a 5-day online training programme organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners, aimed at the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals and patients’ representatives.

The fully online event will take place from September 27th – October 1st and is composed of two learning modules: a three-day module (September 27th–29th) that will cover rare disease registries and a two-day module (September 30th–October 1st) on the FAIRification of data.

Registration is currently open but will close on July 11th. As each training module is limited to 30 attendees, those chosen to participate from among the applicants will be informed by July 30th, with a further waiting list open until September 12th.

Both modules will feature interactive plenary presentations and Q&A sessions between speakers and participants, with the second module also offering hands-on exercises.

More information and registration here: