EJP RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease strategies with the EJP RD targeted towards policy makers and persons involved in national, EU, and international rare diseases strategies.
The fully online strategy meeting will take place on 8th July 2021 from 09:30 – 17:00 CET.
The workshop is organised by one of the EJP RD work packages and will focus on:
- Presentation of EJP RD advancement and analysis of national actions
- Review of country-level best practices and challenges identified from a survey
- Discussion of the way forward.
Online registration for the event is open until July 3rd at the link here.
More information and registration here: https://www.ejprarediseases.org/event/integrative-research-and-innovation-strategy-alignment-of-national-rare-diseases-strategies-with-the-european-joint-programme-on-rare-diseases/