Conference on European Rare Disease Ecosystem: A Collaborative Path Forward

EJP RD is co-organising the “Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward” conference in cooperation with Alexion, EURORDIS, EUCOPE, and EuropaBio. The conference is targeted towards representatives of the different communities active in rare diseases: patients, researchers, clinicians, regulators, investors, payers, and industry.

The fully online conference will take place on November 9, 2021 from 14.00 – 18.00 CET.

This high-level conference will be the occasion to discuss the rare disease ecosystem in its whole spectrum of policies and stakeholders at the national, EU and international level. Starting from a general discussion on how to enable the ecosystem and needs to fulfil, the conference will then develop through three different areas: Research and Development, regulatory approval, and access.

More information and registration here: