The 3rd International Conference on Rare Diseases organized by Rare Diseases Greece (RDG), “95” Rare Alliance Greece and Boussias and supported by EJP RD took place on February 28 & March 1, 2023.
The presentations are now available here: https://www.rarediseases-conference.com/history/presentations-2023/
Following the success of the previous two years and having advanced the policy agenda on both national and international level, the Organizing Committee – consisting of the Rare Diseases Greece (RDG), the umbrella organization with its 28 members that represent the rare disease community in the country, and the “95” Rare Alliance Greece – brings together all the key initiatives and stakeholders currently shaping the rare disease landscape with the aim to highlight the urgent call to action in adopting a European RD Action Plan and its implementation across Member States.
EJP RD Coordinator Dr. Daria Julkowska was a member of the Advisory Committee.