RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]

We empowered a community that deserves to be heard.


Berlin, Germany – 24 March 2023. The seventh edition of the RE(ACT) Congress and the fifth edition of the IRDiRC Conference were held jointly in-person in Berlin (Germany) from 15-18 March 2023.  The event was organized by the BLACKSWAN Foundation in collaboration with the International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD). The congress was also supported by Rare Diseases International (RDI) and EURORDIS.

Approximately 150 attendees participated in the four-day congress, including scientists, physicians, patients and patient organizations, pharmaceutical, biotech, and MedTech industry representatives, start-ups,  and other international stakeholders. The congress featured world-class speakers, panelists, and participants who shared their vision, experiences, and innovative scientific research on rare diseases. The full list of speakers and panelists is available at

Dr. Daria Julkowska, EJP RD Coordinator

The congress presented the latest advancements in knowledge, understanding, and innovation in rare disease research and offered an expanded view of health systems for rare diseases. Focused sessions addressed new tools and technologies for diagnosis, progress, and challenges in advanced therapies for rare diseases, clinical research, regulatory science, and solutions to improve access. The event provided an excellent opportunity for attendees to learn about cutting-edge research and to network with other experts in the rare diseases field.
Contact information: