1st International Conference on Rare Diseases – Press Release

The 1st International Conference on Rare Diseases was held on the 1st and 2nd of March online. The event was a great success and was attended by more than 650 participants from 37 countries around the world (Europe, USA and Asia) including health professionals, researchers, academics, policy makers, industry representatives and patients.

For the first time, the event attempted to capture the entire journey that rare patients experience from diagnosis to access to the treatments and care they need. 60 distinguished speakers shared their knowledge and experience on the latest developments, strategy and important new data on research, new innovative therapies and policies promoted at a European level for the treatment of rare diseases, giving rise to further dialogue and analysis of the needs that exist also in Greece.

The aim of the Conference was, through the exchange of knowledge, ideas, and proposals, to discuss appropriate practices and policies that will help health systems better respond to the needs of the 30 million people living with a rare disease in Europe, while in Greece it is estimated that rare diseases affect 350.000 to 600.000 citizens, although accurate data is not available.

You can find the Conference Press Release here. The conference conclusions and the proposals will be developed and summarized in a position paper in the coming period involving all stakeholders.

We are happy to announce that the organization of the 2nd International Conference on Rare Diseases (GREEK CHAPTER) will take place, February 28 – March 1, 2022.