“European Initiative Targets Diagnosis, Treatment of Rare Diseases” article has just been released on ALS NEWS Today! Check it out! […]
Read MoreRepresentatives from paediatric networks, research infrastructures (RIs), European Reference Networks (ERNs), charities, patients’ associations, Young Persons Advisory Groups (YPAGs), companies’ […]
Read MoreThe European Union has invested heavily in health research. Since the early 2000’s it supported the creation of European Research […]
Read MoreThe rare disease international film festival is the first and only film festival on rare diseases in Europe. It collects […]
Read MoreOn September 16th 2019, a workshop “Rare disease perspectives in Central – Eastern Europe”, twinned to the General Assembly of […]
Read MoreEMA’s human medicines committee (CHMP) has recommended the authorisation of Palynziq (pegvaliase), a new medicine for patients aged 16 and […]
Read MoreA new EURORDIS-led article, “Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on […]
Read MoreNew Frontier Research – Health article by Horizon Magazine on a video at nanometre resolution -first time ever-, where scientists […]
Read MoreThe success of European research missions, which aim to stimulate innovation to solve major societal problems, will require a complete […]
Read MoreA call for application for the preparation of EPTRI feasibility studies has been launched.Feasibility studies are aimed to test the process, the […]
Read More