EURO-NMD host educational webinars that occur on a monthly basis. The webinars are presented with the aim of increasing each […]
Read MoreThe European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, […]
Read MoreNewly adopted Marketing Authorisation Decisions (last six months) The Union Register lists all medicinal products for human and veterinary use […]
Read MoreThe Economic, social and cultural rights new report of the UN highlights the status quo and future needs of persons […]
Read MoreNitisinone is probably the biggest source of hope for alkaptonuria (AKU) patients right now. Research efforts under the DevelopAKUre project […]
Read MoreSpeaking in Brussels, Yann Le Cam, CEO of Eurordis, the European organisation for rare diseases, said, “We have gone from […]
Read MoreThe United Nations Office of the High Commissioner for Human Rights (OHCHR) has made reference to persons living with a […]
Read MoreEuropean Joint Programme on Rare Diseases serves as official partners for the 10th European Conference on Rare Diseases & Orphan […]
Read MoreAs part of the European Biotech Week, EuropaBio will host a panel discussion on the 23rd of September in Brussels. […]
Read MoreOn September 18th and 19th in Brussels, PARADIGM, PFMD and EUPATI will organise the Patient Engagement Open Forum. The Forum aims to provide […]
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