EJP RD launches Instagram for Rare Disease Day 2022!

To commemorate Rare Disease Day 2022 (February 28th), EJP RD is proud to announce the launch of our Instagram account and an exciting social media collaboration with rare disease influencer Prof. Lara Bloom, President and CEO of the Ehlers-Danlos Society. 

On Rare Disease Day 2022, Prof. Bloom will take over our Instagram account and post stories relating to EJP RD as well as the important advocacy work that she’s engaged in.

At 2:30 pm CET, Prof. Bloom will come LIVE on EJP RD’s Instagram all the way from Dubai. She will be joined by EJP RD member Sonja van Weely, who will answer questions about EJP RD’s Networking Support Scheme funding opportunity.