Online events announced in the run up to Third International Summit on Human Genome Editing

News

The UK Royal Society, Academy of Medical Sciences, the US National Academies of Sciences and Medicine and UNESCO-The World Academy of Sciences for the advancement of science in developing countries (TWAS) are jointly organising the Third International Summit on Human Genome Editing in March 2023, postponed from its original date of March 2022. The original dates of March 7th – 9th, 2022 are being used to…

International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

News

The Ehlers-Danlos Society is organising the International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed. This hybrid event will take place in Rome, Italy (Fontana di Trevi Conference Centre)…

Dravet Syndrome Foundation organises Scientific and Family Days 2022

News

The Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for Dravet syndrome and related diseases, is announcing its upcoming conferences taking place in 2022, whose registration is now open at www.dravetconference.com. These in-person events will take place in Madrid, Spain over three days from March 31st – April 2nd. 1. Dravet Syndrome…

BioData World Congress 2021: Big Data and Digital Transformation in Pharmaceuticals and Healthcare

News

The BioData World Congress 2021 organised by Terrapinn is Europe’s largest congress covering big data in pharmaceutical development and healthcare aimed to showcase innovation, demonstrate success and break through the obstacles and barriers to ensure that innovations in genomics and big data enter the clinic with speed and efficiency. This in-person event will take place in Basel, Switzerland over three days from November 2nd–4th.…

World Orphan Drug Congress 2021: Strategy, advocacy and partnering for the orphan drug industry

News

The World Orphan Drug Congress organised by Terrapinn is a global, multi-stakeholder orphan drugs & rare diseases meeting that aims to provide attendees with a one-stop progressive scientific and strategic solution to the orphan drugs industry. The in-person event will take place in Sitges (Barcelona), Spain over four days from November 15th – 18th. Patient groups can ask…

Conference on European Rare Disease Ecosystem: A Collaborative Path Forward

EJP RD News, News

EJP RD is co-organising the « Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward » conference in cooperation with Alexion, EURORDIS, EUCOPE, and EuropaBio. The conference is targeted towards representatives of the different communities active in rare diseases: patients, researchers, clinicians, regulators, investors, payers, and industry. The fully online conference will take place on November 9, 2021 from 14.00 – 18.00 CET.…

EFGCP/DIA Better Medicines for Children Conference

News

The European Forum for Good Clinical Practice and the Drug Information Association are organising The Paediatric “Better Medicines for Children” Conference, an annual flagship event providing a unique opportunity to share best practice updates and a truly global outreach. The event will take place on 18-19 October 2021. Registration is open here. This year the…

Presentation of EJPRD during IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine

News

The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled « Mouse Genetics and Genomic Medicine » to celebrate the occasion of the 10th anniversary of the establishment of the IMPC. The fully virtual conference will take place over two days on September 23rd – 24th. On Day 1 of the conference (September 23rd from 17.35 to 18.00 CET), Dr. Daria…