A funded networking event « European meeting on Phelan-McDermid syndrome » is being organised to discuss the guideline recommendations and to strengthen the collaboration that was started in 2020 by the European consortium on Phelan-McDermid syndrome (PMS) and supported by ERN-ITHACA, in order to tackle the knowledge gaps that they identified, as well as to discuss how best to…
A funded networking event « 2nd International Congress on Biliary Atresia and Related Diseases (BARD) » is being organised to offer access to the latest research and analysis related to this family of rare diseases. This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the second round of funding…
A funded networking event “3rd International Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome (WAS2022)” is being organised to offer access to the latest research and analysis related to this rare disease. This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the first round of funding…
EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in person in Berlin, Germany from March 15th – 18th, 2023. The joint event « RE(ACT) Congress and IRDiRC Conference 2023 » aims to bring together scientific leaders and experts and young scientists from various…
The Innovative Health Initiative (IHI), a European Union public-private partnership funding health research and innovation, is organising a kick-off and brokerage event that will provide pertinent information on upcoming IHI call topics and processes and facilitate network building through face-to-face and virtual meetings as well as pitching sessions. This event, which is targeted towards small and medium-sized enterprises,…
The European Commission (EC) is organising, in May and June 2022, a virtual marketplace and a series of online matchmaking events that offer African and European organisations an opportunity to strengthen old and forge new ties with the pharma, biotech, medtech and life-science industries across the two continents. Several virtual events (webinars, healthcare marketplace, matchmaking meetings)…
EJP RD’s innovative Rare Diseases Research (RDR) Challenges call in partnership with Fondation Maladies Rares was aimed at facilitating and funding collaboration between industry, academia, SMEs, and patient organisations to solve specific research challenges in rare diseases. The fourth challenge issued under the RDR call was for the development of a pre-clinical assay to detect instability of microsatellite repeat expansions. We are glad to…
University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training Workshop titled « Genetic Biobanks for Rare Disease Research » targeted at biomedical researchers, medical professionals, and biobank managers who want to learn about genetic biobanks in rare disease research. The training workshop will take place online over…
In April 2022, the Critical Path Institute (C-Path) and the European regulatory, industry and research community were excited to introduce « C-Path in Europe: Moving Global Regulatory Science Forward » as a webinar. The presentation highlighted how the nonprofit’s new headquarters in Amsterdam will continue to improve public health, share expertise, data, risks and costs to move…
EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. The exchange can be carried out (1) within the same ERN (Full Members…