In the context of EJP RD’s ERN Workshops, a face-to-face workshop on clinical epidemiological research for ERNs titled “Clinical Research: […]
Read MoreThe World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) has three Scientific Committees, one each for Diagnostics, Therapies and Interdisciplinary aspects of […]
Read MoreNCATS along with NICHD and NINDS of the National Institutes of Health (NIH) are co-hosting a virtual NIH roundtable meeting […]
Read MoreAs part of its review of the Orphan and Paediatric Regulations announced in 2020, the European Commission (EC) has launched […]
Read MoreIn February 2021, the Coordination and Support Action on Strengthening Training of Academia in Regulatory Science (CSA STARS) Consortium organized a four-day online […]
Read MoreThe FAIRplus project, which aims to develop tools and guidelines for making life science data FAIR (Findable, Accessible, Interoperable, Reusable) […]
Read MoreThe Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is organizing its 16th Annual Congress on Neuromuscular […]
Read MoreAction for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar on […]
Read MoreThe ProDGNE consortium, funded as part of the EJP RD’s Joint Transnational Call 2020 “Pre-Clinical Research to Develop Effective Therapies […]
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