A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]
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The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]
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The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker will […]
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A recent report of the joint action Towards the European Health Data Space (TEHDAS) examines EU-level and national funding for health […]
Read MoreA recent report of the joint action Towards the European Health Data Space (TEHDAS) identifies a minimum set of technical […]
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The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug Administration (FDA), Center for […]
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The European Medicines Agency (EMA) is organising a joint EMA/HMA/TEHDAS Data Quality Framework for Medicines workshop as a virtual meeting on […]
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As part of the EJP RD Training series, an advanced-level training webinar on the topic “Composite endpoints including patient relevant […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Modelling & Simulation: Research Methodologies for Small Populations in Rare Diseases” aimed at […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Functional exploration of genetic variants in cardiac diseases” aimed at presentation of functional explorations […]
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