Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take place on Tuesday, April 27 at 11:00 GMT.
Dr Michaela Guglieri from John Walton Muscular Dystrophy Research Centre, an expert in the field of neuromuscular conditions, will explain the research project she is leading. She will present the study and preliminary results during the hour-long webinar.
More information and registration here: https://www.share4rare.org/news/research-study-neuromuscular-diseases-interactive-session-families
