IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap.
Check out the newly approved Task Forces:
- Funding Models to Support the Spectrum of Rare Disease Research and Development
The overall objective of this Task Force is to identify how different types of funders make decisions about when to fund at a given stage in a treatment’s development and the factors that contribute to this process.
More details on the candidates profiles: here.
- Framework to assess impacts associated with diagnosis, treatment, support, and community integration
The overall objective of this Task Force is to develop, operationalize, and test a comprehensive framework of holistic, multidimensional, and evolving life-long experiences of patients and families living with a rare disease.
More details on the candidates profiles: here.
- Functional Analysis
The overall objective of this Task Force is to create a framework for the robust and effective ecosystem of functional analyses in rare diseases.
More details on the candidates profiles: here.
- Preparing for genetic N-of-1 treatments of patients with ultra-rare mutations
The overall objective of this Task Force is to connect different N-of-1+ efforts to reduce duplication, achieve global consensus and create a roadmap towards development and implementation of N-of-1+ treatment.
More details on the candidates profiles: here.
How to Apply?
If you are interested in taking part in any of these activities please send a CV, biosketch, and letter of motivation (one paragraph each) to the IRDiRC Scientific Secretariat (scisec-irdirc@ejprarediseases.org) with the email title “TF Member Application-IRDiRC-[TF Name]” before 20 February 2023.
