10
Nov
2022Training for patient representatives and advocates on leadership and communication skills
IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution of the Covid-19 pandemic and to the international situation.The registration is now open for the RESERVE LIST…
- 09:30 - 17:30 (11 novembre 2022)
- Online
19
Oct
2022Quality assurance, variant interpretation and data management in the NGS diagnostics era
GENERAL INFORMATION Due to the force majeure situation and in order to ensure the correct progress of the planned tasks of EJP RD, the international course “Quality assurance, variant interpretation and data management in the NGS diagnostics era”, October…
- 10:00 - 14:00 (21 octobre 2022)
- ONLINE
26
Sep
2022International Summer School on Rare Disease Registries and FAIRification of data
REGISTRATION IS NOW OPEN HERE until the 29th of May 2022. IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution of the Covid-19 pandemic and to the international situation.…
- 13:30 - 17:10 (30 septembre 2022)
- Online
14
Juin
2022Genetic biobanks for Rare Disease Research
GENERAL INFORMATION Rare disease (RD) is one area where national and international multidisciplinary collaborations are valuable to overcome some of the present challenges in research. Access to infrastructures, collaborative research and policy platforms, virtual platforms…
- 09:00 - 17:00 (15 juin 2022)
- Online