Past RD Research Trainings

06

Mai

2022

Composite endpoints including patient relevant endpoints (Quality of Life)

https://www.youtube.com/watch?v=VkVaaCRClgs GENERAL INFORMATION When assessing the efficacy of a treatment in any clinical trial, it is recommended by the International Council for Harmonisation to select a single meaningful endpoint. However, a single endpoint is often…

  • 16:00 - 18:30
  • Online

11

Avr

2022

Training on strategies to foster solutions of undiagnosed rare disease cases

11– 13 April 2022. This course is online with a web-conferencing format. REGISTRATION IS NOW CLOSED. An e-mail will be sent by 18 March 2022 to the selected participants.Respondents should consider themselves on a reserve…

  • 09:45 - 16:45 (13 avril 2022)
  • Online

14

Déc

2021

EJP RD TRAINING WEBINAR: Does Randomization matter in RD clinical trials?

https://www.youtube.com/watch?v=7rmrN2Cs6C4 General information Rare Diseases (RD) is an area where national and international multidisciplinary collaborations are valuable to overcome some of the present challenges in research. Comparative trials serve as a major basis for evaluation…

  • 16:00 - 18:30
  • Online

26

Nov

2021

First paediatric expert patients training workshop

DEADLINE EXTENDED: 5 NOVEMBER 2021 Are you an adolescent aged from 12 to 18 interested in the themes of health, biomedical research, healthcare, and children rights?Are you a patient with a chronic rare disease interested…

  • 15:00 - 17:30
  • Online