Past RD Research Trainings

26

Sep

2022

International Summer School on Rare Disease Registries and FAIRification of data

REGISTRATION IS NOW OPEN HERE until the 29th of May 2022. IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution of the Covid-19 pandemic and to the international situation.…

  • 13:30 - 17:10 (30 September 2022)
  • Online

14

Jun

2022

Genetic biobanks for Rare Disease Research

GENERAL INFORMATION Rare disease (RD) is one area where national and international multidisciplinary collaborations are valuable to overcome some of the present challenges in research. Access to infrastructures, collaborative research and policy platforms, virtual platforms…

  • 09:00 - 17:00 (15 June 2022)
  • Online

06

May

2022

Composite endpoints including patient relevant endpoints (Quality of Life)

https://www.youtube.com/watch?v=VkVaaCRClgs GENERAL INFORMATION When assessing the efficacy of a treatment in any clinical trial, it is recommended by the International Council for Harmonisation to select a single meaningful endpoint. However, a single endpoint is often…

  • 16:00 - 18:30
  • Online

11

Apr

2022

Training on strategies to foster solutions of undiagnosed rare disease cases

11– 13 April 2022. This course is online with a web-conferencing format. REGISTRATION IS NOW CLOSED. An e-mail will be sent by 18 March 2022 to the selected participants.Respondents should consider themselves on a reserve…

  • 09:45 - 16:45 (13 April 2022)
  • Online