Past RD Research Trainings

06

May

2022

Composite endpoints including patient relevant endpoints (Quality of Life)

GENERAL INFORMATION When assessing the efficacy of a treatment in any clinical trial, it is recommended by the International Council for Harmonisation to select a single meaningful endpoint. However, a single endpoint is often not…

  • 16:00 - 18:30
  • Online

11

Apr

2022

Training on strategies to foster solutions of undiagnosed rare disease cases

11– 13 April 2022. This course is online with a web-conferencing format. REGISTRATION IS NOW CLOSED. An e-mail will be sent by 18 March 2022 to the selected participants.Respondents should consider themselves on a reserve…

  • 09:45 - 16:45 (13 April 2022)
  • Online

14

Dec

2021

EJP RD TRAINING WEBINAR: Does Randomization matter in RD clinical trials?

General information Rare Diseases (RD) is an area where national and international multidisciplinary collaborations are valuable to overcome some of the present challenges in research. Comparative trials serve as a major basis for evaluation of…

  • 16:00 - 18:30
  • Online

26

Nov

2021

First paediatric expert patients training workshop

DEADLINE EXTENDED: 5 NOVEMBER 2021 Are you an adolescent aged from 12 to 18 interested in the themes of health, biomedical research, healthcare, and children rights?Are you a patient with a chronic rare disease interested…

  • 15:00 - 17:30
  • Online