Past RD Research Trainings

03

Avr

2023

Training on strategies to foster solutions of undiagnosed rare disease cases

Registration is now open here for the reserve list only until 2 March 2023.An e-mail will be sent by 3 March 2023 to the selected participants. General information The “Training on strategies to foster solutions of undiagnosed…

  • 09:30 - 16:30 (5 avril 2023)
  • Rome, Italy

24

Mar

2023

Statistical and operational challenges with master protocols

https://www.youtube.com/watch?v=0nF8a2RPeKA General Information During this webinar, we will explain what is meant by master protocols comparing basket, umbrella and platform trials . We will focus on platform trials and how they compare to traditional drug…

  • 16:00 - 18:30
  • Online

28

Nov

2022

EJP RD Training: Biobanking in rare diseases: the Poland experience

GENERAL INFORMATION Through the last decade access to modern healthcare has improved significantly.  The lack of scientific knowledge about rare diseases (RDs) often results in a delay in diagnosis or availability of effective cures for…

  • 14:00 - 17:45 (29 novembre 2022)
  • Online

18

Nov

2022

The Statistical Evaluation of Surrogate Endpoints in Clinical Trials

https://www.youtube.com/watch?v=G0qers1DACk General information Both humanitarian and commercial considerations have spurred intensive search for methods to reduce the time and cost required to develop new therapies. The identification and use of surrogate endpoints, i.e. measures that…

  • 16:00 - 18:30
  • Online