The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the commentary on 10 years of progress and […]
Read MoreLondon, UK – July 2022: The RDNN Board of Trustees and Management is delighted to announce the recent registration of […]
Read MoreFollowing the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and […]
Read MoreThe European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB) and BBMRI-ERIC are organising the Europe Biobank Week […]
Read MoreThe European Medicines Agency (EMA) has recommended a conditional marketing authorisation in the European Union (EU) for Tecvayli (teclistamab), a monoclonal antibody […]
Read MoreThe pre-announcement of the CHIST-ERA Call ORD is online! It will target R&D projects in the following topic: “Open & […]
Read MoreThe Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which […]
Read MoreA funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together patient families, […]
Read MoreA new, free-of-charge webinar in collaboration with the AAAS/Science magazine is available on demand since July 9th. This webinar broadcasted […]
Read MoreAs part of the training activities proposed by the EJP RD, a 3-day training course titled “Quality assurance, variant interpretation […]
Read More