EJP RD Funding Unwrapped: Veronica Popa’s Insights on Patient Involvement

Watch the insightful interview with Veronica Popa, a patient expert, as she delves into the subject of patient engagement in pre-clinical therapy development, the challenges, and the impact of EJP RD funding.The video is available hereIn this interview, she explores examples and discusses the challenges hindering patient participation in research projects.More information on EJP RD…

Dr. Anneliene Jonker (IRDiRC) interviewed for article on medical devices for rare diseases

International Rare Diseases Research Consortium (IRDiRC) member Dr. Anneliene Jonker, Vice Chair of the Therapies Scientific Committee (TSC) of IRDiRC, has been interviewed extensively for an article published in the February 2022 issue of Medical Technology magazine. The article, titled “Medical devices for rare diseases: the unmet need”, presents the goals of the IRDiRC Working Group on MedTech for Rare Diseases, the…