The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September 7 will be accessible for everybody via Zoom, and is available with live Spanish interpretation.
Speakers include Prof. Ros Quinlivan, Dr. Jos Hendriksen, Nicoletta Madia, Elizabeth Vroom and Hlawulani Mkhabela. Apart from these, Duchenne adults from different parts of the world will share their experience of living with Duchenne.
Over the past decades, the life expectancy of people living with DMD has increased significantly. This can largely be attributed to improved care. Care considerations for Duchenne were published in 2010 and updated in 2018. However, these guidelines are focus primarily on the pediatric population of people living with Duchenne.