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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: eurogen

EJP RD - European Joint Programme on Rare Diseases - News and events - News - eurogen
  • 27 Jun
  • 2022

ERN eUROGEN webinar: Williams-Beuron Syndrome: A Focus on Long-Term Patient Care

  • News

ERN eUROGEN, ERN ITHACA and ERN ERKNet are organising a webinar on July, 6th 2022, at 18:00 CEST.  You can […]

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  • 27 Jun
  • 2022

ERN eUROGEN webinar: Summer ’22 Update

  • News

ERN eUROGEN is organising a webinar on June, 29th 2022, at 18:00 CEST. This webinar will provide an overview of their […]

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Latest Posts

  • Commentary on 10 years of IRDiRC available as full text
  • Press Release: Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission
  • Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases
  • Programme available for Europe Biobank Week Roadshow 2022 (EBW22)
  • EMA recommends new medicine for multiple myeloma patients with limited treatment options

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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