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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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EJP RD - European Joint Programme on Rare Diseases - News and events - News - ejp rd
  • 17 Mar
  • 2023

Training for patient representatives and advocates on leadership and communication skills

  • EJP RD News

As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]

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  • 16 Mar
  • 2023

DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

  • EJP RD News, ERN-Research (ERICA)

The deadline for the “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” […]

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  • 21 Oct
  • 2022

EJP RD Training: Biobanking in rare diseases: the Poland experience

  • EJP RD News

The upcoming EJP RD training entitled Biobanking in rare diseases: the Poland experience is now open for registration. The 2-day […]

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  • 05 Oct
  • 2022

Registration open for the Third International Summit on Human Genome Editing

  • EJP RD News

The registration for the Third International Summit on Human Genome Editing is now open. The event will take place on […]

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  • 05 Oct
  • 2022

Rare Conversations – Rare Disease Policies: Pioneering the way towards a resilient ecosystem

  • EJP RD News

EJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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