The EJP RD is proud to announce that the Smart Guidance tool for the FAIRification of rare disease registries was […]
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As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of […]
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All ERNs are tasked to set up patient registries that follow the FAIR Principles, as these ‘FAIR registries’ are essential […]
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As part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and […]
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