ProDGNE Meeting 2022

The ProDGNE consortium is organising the ProDGNE Meeting 2022, a multi-stakeholder opportunity to meet in person, discuss impactful research in GNE Myopathy (GNEM) and expand the research network while building a long-term partnership where patients are central partners, key drivers and decision makers in R&D.  The meeting will be held on May 31st, 2022 in Portugal (Sala Ágora, NOVA School…

ProDGNE Kick-Off Webinar

The ProDGNE consortium, funded as part of the EJP RD’s Joint Transnational Call 2020 « Pre-Clinical Research to Develop Effective Therapies for Rare Diseases », announces its ProDGNE Kick-Off Webinar. The webinar will take place on June 03, 2021 from 18.00 – 19.00 CET. The webinar will present ProDGNE, a 3-year transnational pre-clinical research project that brings together patients and researchers from…