Check out the #ECRD2024 comic strip showcasing major milestones from the 1st ECRD to today and beyond!At labor #7, we celebrate the launch of EJP RD in 2019, marking a major step forward in unifying and accelerating rare disease research. Read the document here. Introduction: In Europe, four champions – Emilia, Сamilo, Rosalind and Damiano…
Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and was organized by EURORDIS and co-organized by Orphanet with EJP RD serving as a Full Partner, the involved parties came together to write an open letter to Commissioner Kyriakides of the European Commission, calling for…
The 11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 is being organized by EURORDIS and co-organized by Orphanet, with EJP RD serving as a full partner. The ECRD is a patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies. The fully online conference will take place…