Skip to content
EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
x
  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
    • Privacy policy
  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
  • Helpdesk

Tag: share4rare

EJP RD - European Joint Programme on Rare Diseases - News and events - News - share4rare
  • 13 Apr
  • 2022

Share4Rare webinar: Medical imaging in rare disease diagnosis

  • News

The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker will […]

Read More
  • 01 Jun
  • 2021

Share4Rare webinar: Setting the Path for Next Generation Data Sharing

  • News

The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, […]

Read More
  • 20 Apr
  • 2021

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

  • News

Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar […]

Read More

Search

Categories

  • EJP RD News
  • Networking events funded by EJP RD
  • News
  • Uncategorized

Popular Tags

clinical research clinical trial conference congress data sharing dravet syndrome drug repurposing EJPRD ema ERN ern research training workshops european commission EURORDIS FAIR fda funding funding opportunity gene therapies genomics health data IHI IMI innovation irdirc JTC2022 MOOC networking networking event networking support scheme NSS OMP regulation open call orphan drugs paediatric patient patients rare diseases report survey symposium task force training virtual event webinar workshop

Latest Posts

  • SAVE THE DATE: RE(ACT) Congress and IRDiRC Conference 2023
  • Innovative Health Initiative (IHI) announces Kick-off and brokerage event
  • EC organises EU–Africa Pharma and Healthcare Marketplace and Matchmaking events
  • Rare Diseases Research (RDR) Challenge #4: Development of a novel pre-clinical assay (TRXassay) to detect triplet repeat expansions
  • EJP RD Training Workshop: Genetic Biobanks for rare disease research

Featured Links

  • Helpdesk
  • Sitemap
  • Careers

Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

© Copyright EJP RD.
×
You must be logged in before using WishList. To login click here