The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker will be Dr. Josep Munuera, radiologist and Head of the Quality, Innovation and Research Section of the Diagnostic Imaging Service at Hospital Sant Joan de Déu Barcelona, Spain. The webinar will take place on April 20th from 17.00 – 18.00 CET.…
The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, setting the base for the next generation of data sharing in rare diseases. The webinar will take place on June 8th from 15.00 – 18.00 CET. In this online event targeted towards rare disease patients and their families, patient…
Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take…